Wall-E: Upweirdly mobile |
I get it.
At least Hepburn had decades-worth of glamour images through which to chart her oh-so-subtle decline — photographed by George Cukor, gowned by Edith Head.
But with a persistent autoimmune disease like MS, you don't get to review the progress of your life as a gracefully unspooling montage. It's more like time-lapse photography where everything changes in seconds.
My body is becoming an alien life form, in an ongoing, unpredictable state of metamorphosis. Rising from a sitting position requires 15 minutes of standing in place to see if all pertinent body parts are on the same page before I dare a step. My shoulders and upper arms have grown taut and sinewy from clutching my roallator for dear life as I drag my clumsy body around behind me like a tail.
I don't do fast. I have only two ambulatory speeds: shuffle and lurch. Except when one or the other (or both) of my legs launches into an unprovoked series of random spasms, when I look like a refugee from the Ministry of Silly Walks.
The Maze: Night and Frog |
Remember Wall-E, where technology has rendered future humans so sedentary they can only get around on individual little jet pods? That’s what I need!
Meanwhile, navigating the world of visiting home health care, I find myself teetering at the edge of a new reality where "toilet" is not only a verb, but a team sport. After spending 40 years as somebody's sweetie, it's weird to think of a future as somebody's client.
How much me is too much? |
And while all these clones were running around, maybe — just maybe — Actual Me could carve a couple of hours out of the day to write.
The problem with the Clone Theory is that I've become such a crab, I don't want any more than one of me around.
If only I'd thought to have James cloned while he was still here. My body might be rotting just as fast, but at least he'd find a way to make me laugh about it!
Yeah, there's little to laugh about regarding your disease. And you've probably heard enough of "I admire your strength" remarks, as though you have any other worthwhile choice but to continue on as best you can. Likely it's a toss-up between having MS and having to deal with it on your own for worst thing ever, too. I have lately turned 70 and the increase in possible medical issues has made me worried, since I have no relatives or friends who live close to me. But I can only try to imagine the situation - you are living it. I wish there was a workaround for sucky.
ReplyDeleteThanks, Robyn — me too! I am also turning 70 this year, just to make things extra fun. But, as you say, I have no choice but to slog on. Fortunately, I have a very supportive "village" of friends and neighbors cheering me on.
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